Infographic: The Burden of Rare Diseases

Monday, March 18th, 2013
This post was written by Patricia Donovan

In honor of Rare Disease Day, celebrated last month at TED2013, an annual conference sponsored by the nonprofit devoted to Ideas Worth Spreading, TED2012 Fellow C Jimmy Lin awarded $500,000 worth of research to help 26 different rare diseases and launched a striking infographic that demystifies rare diseases, created in collaboration with graphic artist & TED Senior Fellow Lope Gutiérrez-Ruiz. A disease is considered “rare” when it affects less than 200,000 people in the United States or fewer than 1 in 2,000 people in Europe.

The infographic highlights the importance and burden of rare disease, but also is meant to inspire hope for the patients, families and the whole community.

rare diseases

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You may also be interested in this related resource: Electronic Health Record: Standards, Coding Systems, Frameworks, and Infrastructures.


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